Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes

Chris Oliver; Katherine  Ellis; Georgie Agar; Stacey Bissell; Justin Cheuk Yin Chung; Hayley Crawford; Effie Pearson; Kelly Wade; Jane Waite; Debbie Allen; Lucy Deeprose; Georgina Edwards; Lauren Jenner; Breanne Kearney; Lauren Shelley; Kayla Smith; Hayley Trower; Dawn Adams; Louise Daniel; Laura Groves; Mary  Heald; Joanna Moss; Caroline Richards; Rachel  Royston; Joanne Tarver; Alice Welham; Lucy Wilde; Kate Woodcock

doi:10.1016/bs.irrdd.2022.05.004

Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes

Chris Oliver, Katherine Ellis, Georgie Agar, Stacey Bissell, Justin Cheuk Yin Chung, Hayley Crawford, Effie Pearson, Kelly Wade, Jane Waite, Debbie Allen, Lucy Deeprose, Georgina Edwards, Lauren Jenner, Breanne Kearney, Lauren Shelley, Kayla Smith, Hayley Trower, Dawn Adams, Louise Daniel, Laura GrovesMary Heald, Joanna Moss, Caroline Richards, Rachel Royston, Joanne Tarver, Alice Welham, Lucy Wilde, Kate Woodcock

Research output: Chapter in Book/Published conference output › Chapter

Abstract

Previously, we have proposed that there are nine domains that warrant assessment when intervening to decrease challenging behavior and\or increase well-being in people with profound or severe intellectual disability and complex needs. These domains are: pain and discomfort, sensory sensitivity, anxiety and low mood, sleep, emotional dysregulation, cognitive difference, learned or functional behaviors, and expressive communication. In this article we: (1) identify specific challenging behaviors that might be influenced by these domains, (2) describe the relationship between these domains and the specified challenging behaviors, (3) identify assessments for each domain and (4) describe interactions between the domains. Our aim in this article is to provide practitioners with a framework for assessment and to stimulate debate about the domains that are demonstrably important when considering challenging behavior and well-being in people with profound or severe intellectual disability and complex needs.

Original language	English
Title of host publication	Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders
Editors	Anna J. Esbensen, Emily K. Schworer
Chapter	4
Pages	109-189
Volume	62
DOIs	https://doi.org/10.1016/bs.irrdd.2022.05.004
Publication status	Published - 24 Sept 2022

Publication series

Name	International Review of Research in Developmental Disabilities
Volume	62
ISSN (Print)	2211-6095

Keywords

Challenging behavior
Intellectual disability
Autism spectrum disorder
Sleep
Anxiety
Sensory sensitivity
Pain
Functional analysis
Assessment
Communication

Access to Document

10.1016/bs.irrdd.2022.05.004

Cite this

Oliver, C., Ellis, K., Agar, G., Bissell, S., Cheuk Yin Chung, J., Crawford, H., Pearson, E., Wade, K., Waite, J., Allen, D., Deeprose, L., Edwards, G., Jenner, L., Kearney, B., Shelley, L., Smith, K., Trower, H., Adams, D., Daniel, L., ... Woodcock, K. (2022). Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes. In A. J. Esbensen, & E. K. Schworer (Eds.), Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders (Vol. 62, pp. 109-189). (International Review of Research in Developmental Disabilities; Vol. 62). https://doi.org/10.1016/bs.irrdd.2022.05.004

Oliver, Chris ; Ellis, Katherine ; Agar, Georgie et al. / Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes. Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders. editor / Anna J. Esbensen ; Emily K. Schworer. Vol. 62 2022. pp. 109-189 (International Review of Research in Developmental Disabilities).

@inbook{407a4aeb347546ffa8e8fdf8299285a2,

title = "Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes",

abstract = "Previously, we have proposed that there are nine domains that warrant assessment when intervening to decrease challenging behavior and\or increase well-being in people with profound or severe intellectual disability and complex needs. These domains are: pain and discomfort, sensory sensitivity, anxiety and low mood, sleep, emotional dysregulation, cognitive difference, learned or functional behaviors, and expressive communication. In this article we: (1) identify specific challenging behaviors that might be influenced by these domains, (2) describe the relationship between these domains and the specified challenging behaviors, (3) identify assessments for each domain and (4) describe interactions between the domains. Our aim in this article is to provide practitioners with a framework for assessment and to stimulate debate about the domains that are demonstrably important when considering challenging behavior and well-being in people with profound or severe intellectual disability and complex needs.",

keywords = "Challenging behavior, Intellectual disability, Autism spectrum disorder, Sleep, Anxiety, Sensory sensitivity, Pain, Functional analysis, Assessment, Communication",

author = "Chris Oliver and Katherine Ellis and Georgie Agar and Stacey Bissell and {Cheuk Yin Chung}, Justin and Hayley Crawford and Effie Pearson and Kelly Wade and Jane Waite and Debbie Allen and Lucy Deeprose and Georgina Edwards and Lauren Jenner and Breanne Kearney and Lauren Shelley and Kayla Smith and Hayley Trower and Dawn Adams and Louise Daniel and Laura Groves and Mary Heald and Joanna Moss and Caroline Richards and Rachel Royston and Joanne Tarver and Alice Welham and Lucy Wilde and Kate Woodcock",

year = "2022",

month = sep,

day = "24",

doi = "10.1016/bs.irrdd.2022.05.004",

language = "English",

isbn = "9780323988834",

volume = "62",

series = "International Review of Research in Developmental Disabilities",

pages = "109--189",

editor = "Esbensen, {Anna J.} and Schworer, {Emily K. }",

booktitle = "Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders",

}

Oliver, C, Ellis, K, Agar, G, Bissell, S, Cheuk Yin Chung, J, Crawford, H, Pearson, E, Wade, K, Waite, J, Allen, D, Deeprose, L, Edwards, G, Jenner, L, Kearney, B, Shelley, L, Smith, K, Trower, H, Adams, D, Daniel, L, Groves, L, Heald, M, Moss, J, Richards, C, Royston, R, Tarver, J, Welham, A, Wilde, L & Woodcock, K 2022, Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes. in AJ Esbensen & EK Schworer (eds), Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders. vol. 62, International Review of Research in Developmental Disabilities, vol. 62, pp. 109-189. https://doi.org/10.1016/bs.irrdd.2022.05.004

Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes. / Oliver, Chris; Ellis, Katherine ; Agar, Georgie et al.
Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders. ed. / Anna J. Esbensen; Emily K. Schworer. Vol. 62 2022. p. 109-189 (International Review of Research in Developmental Disabilities; Vol. 62).

Research output: Chapter in Book/Published conference output › Chapter

TY - CHAP

T1 - Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes

AU - Oliver, Chris

AU - Ellis, Katherine

AU - Agar, Georgie

AU - Bissell, Stacey

AU - Cheuk Yin Chung, Justin

AU - Crawford, Hayley

AU - Pearson, Effie

AU - Wade, Kelly

AU - Waite, Jane

AU - Allen, Debbie

AU - Deeprose, Lucy

AU - Edwards, Georgina

AU - Jenner, Lauren

AU - Kearney, Breanne

AU - Shelley, Lauren

AU - Smith, Kayla

AU - Trower, Hayley

AU - Adams, Dawn

AU - Daniel, Louise

AU - Groves, Laura

AU - Heald, Mary

AU - Moss, Joanna

AU - Richards, Caroline

AU - Royston, Rachel

AU - Tarver, Joanne

AU - Welham, Alice

AU - Wilde, Lucy

AU - Woodcock, Kate

PY - 2022/9/24

Y1 - 2022/9/24

N2 - Previously, we have proposed that there are nine domains that warrant assessment when intervening to decrease challenging behavior and\or increase well-being in people with profound or severe intellectual disability and complex needs. These domains are: pain and discomfort, sensory sensitivity, anxiety and low mood, sleep, emotional dysregulation, cognitive difference, learned or functional behaviors, and expressive communication. In this article we: (1) identify specific challenging behaviors that might be influenced by these domains, (2) describe the relationship between these domains and the specified challenging behaviors, (3) identify assessments for each domain and (4) describe interactions between the domains. Our aim in this article is to provide practitioners with a framework for assessment and to stimulate debate about the domains that are demonstrably important when considering challenging behavior and well-being in people with profound or severe intellectual disability and complex needs.

AB - Previously, we have proposed that there are nine domains that warrant assessment when intervening to decrease challenging behavior and\or increase well-being in people with profound or severe intellectual disability and complex needs. These domains are: pain and discomfort, sensory sensitivity, anxiety and low mood, sleep, emotional dysregulation, cognitive difference, learned or functional behaviors, and expressive communication. In this article we: (1) identify specific challenging behaviors that might be influenced by these domains, (2) describe the relationship between these domains and the specified challenging behaviors, (3) identify assessments for each domain and (4) describe interactions between the domains. Our aim in this article is to provide practitioners with a framework for assessment and to stimulate debate about the domains that are demonstrably important when considering challenging behavior and well-being in people with profound or severe intellectual disability and complex needs.

KW - Challenging behavior

KW - Intellectual disability

KW - Autism spectrum disorder

KW - Sleep

KW - Anxiety

KW - Sensory sensitivity

KW - Pain

KW - Functional analysis

KW - Assessment

KW - Communication

UR - https://www.sciencedirect.com/science/article/abs/pii/S2211609522000045

UR - http://www.scopus.com/inward/record.url?scp=85136252995&partnerID=8YFLogxK

U2 - 10.1016/bs.irrdd.2022.05.004

DO - 10.1016/bs.irrdd.2022.05.004

M3 - Chapter

SN - 9780323988834

VL - 62

T3 - International Review of Research in Developmental Disabilities

SP - 109

EP - 189

BT - Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders

A2 - Esbensen, Anna J.

A2 - Schworer, Emily K.

ER -

Oliver C, Ellis K, Agar G, Bissell S, Cheuk Yin Chung J, Crawford H et al. Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes. In Esbensen AJ, Schworer EK, editors, Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders. Vol. 62. 2022. p. 109-189. (International Review of Research in Developmental Disabilities). Epub 2022 Aug 19. doi: 10.1016/bs.irrdd.2022.05.004

Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes

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