TY - JOUR
T1 - Getting involved
T2 - The extent and impact of patient and public involvement in the Swedish health system
AU - Fredriksson, Mio
AU - Tritter, Jonathan Q
N1 - The final publication is available via Cambridge Journals Online at http://dx.doi.org/https://doi.org/10.1017/S174413311900015X
PY - 2020/7
Y1 - 2020/7
N2 - Patient and public involvement (PPI) is framed as beneficial for individuals and for the health system. However, little is known about the extent of involvement, or of its impact. Based on data from Sweden, we show that apart from voting in regional elections (76%), more people reported involvement as individual patients (23%) than part of collective activities (5%) or activities relating to a citizen perspective (4%). There was no correlation between how many people participated and the estimated impact - which was generally low. More extensive involvement is thus not linked to the potential to influence decisions. We argue that to achieve the benefits associated with PPI it is crucial to understand more about people's motivation for being involved and what underlies low estimates of impact. This requires a more systematic approach to involvement, how it is evaluated and its results communicated to participants and the society. We also argue that a future challenge for the Swedish health system, and for other similar health systems, is to support long-term collective involvement in the midst of growing individualization of health services and involvement opportunities primarily intended for patients.
AB - Patient and public involvement (PPI) is framed as beneficial for individuals and for the health system. However, little is known about the extent of involvement, or of its impact. Based on data from Sweden, we show that apart from voting in regional elections (76%), more people reported involvement as individual patients (23%) than part of collective activities (5%) or activities relating to a citizen perspective (4%). There was no correlation between how many people participated and the estimated impact - which was generally low. More extensive involvement is thus not linked to the potential to influence decisions. We argue that to achieve the benefits associated with PPI it is crucial to understand more about people's motivation for being involved and what underlies low estimates of impact. This requires a more systematic approach to involvement, how it is evaluated and its results communicated to participants and the society. We also argue that a future challenge for the Swedish health system, and for other similar health systems, is to support long-term collective involvement in the midst of growing individualization of health services and involvement opportunities primarily intended for patients.
KW - Involvement impact
KW - Sweden
KW - participation
KW - patient and public involvement
UR - https://www.cambridge.org/core/journals/health-economics-policy-and-law/article/getting-involved-the-extent-and-impact-of-patient-and-public-involvement-in-the-swedish-health-system/6E0D9341A98165D8A9E6ACBF92EA4F70
UR - http://www.scopus.com/inward/record.url?scp=85065309188&partnerID=8YFLogxK
U2 - 10.1017/S174413311900015X
DO - 10.1017/S174413311900015X
M3 - Article
SN - 1744-1331
VL - 15
SP - 325
EP - 340
JO - Health Economics, Policy and Law
JF - Health Economics, Policy and Law
IS - 3
ER -